Back in November 2017, we found out that our baby who was due 5/14/2018 had trisomy 21. Two weeks later we ended up in the PICU with our two year old being diagnosed with Type 1 Diabetes. Fast forward through many ultrasounds and preterm labor, our sweet baby joined us 6 weeks early and was in the NICU for 17 days. We were discharged home and ended back up in the hospital July 19th for his first open heart surgery. All went well except after surgery he went into complete heart block. So July 30th, we went back into surgery for a pacemaker. Surgery again went well except his mitral valve started leaking very badly. We have been in the hospital for 41 days this far. We just had his 3rd open heart surgery on August 28th. This has been a long journey full of many road blocks.