The Ellis Family

Saginaw, MN
$500.00 raised of $2,480.00
Mortgage/Rent $2,480.00
4 months
    Kennadie Ellis
    Rare Genetic Disease

    Kennadie was a dream come true after 6 years of trying to get pregnant. We found out a week after my husband’s mother passed away that we were expecting. I did all the blood tests and they came back good, but further along we found out there was possibilities for some issues. We weren’t sure to what extent and neither were the doctors. I was diagnosed with preeclampsia early on in pregnancy and was taken out of work 3 months prior to my due date. I was scheduled to be induced at 37 weeks, but I was hospitalized in Duluth, MN due to complications where I was then transported to Minneapolis Children’s Hospital by ambulance. I was induced once I was stable as my blood pressure was elevated. I was not progressing and my health deteriorated with my oxygen dropping so I was taken  right away to have a c-section. Kennadie was born 4 weeks early. She was diagnosed with a rare genetic disease where she is missing part of chromosome 6 and has an extra piece on chromosome 2.  This has caused her to have brain, heart, and eyes issues. She has had a balloon procedure on her heart, she is scheduled to have a shunt in her brain, she will need a feeding tube, she has cataracts and glaucoma that will be assessed once she is able to visit the doctors at the University of Minnesota. She has been hospitalized since the day she was born 4/6/2022. We have been traveling between our home outside of Duluth and the Children’s Hospital in Minneapolis, so we can be with her as much as possible. With me being out of work for almost 4 months now and my husband trying to balance between work and caring for myself and our daughter we are needing help paying our house payment. 

    July 8, 2022
    Kennadie’s Journey

    We were released June 10th after Kennadie had her brain shunt. We ended up back June 17th in the ER to find out she had a blood infection from a brain infection from her shunt! She also started having seizures from the infection so they put electrodes on her head to monitor and they didn’t watch carefully and she now has pressure wounds and sores on her head from those. We are still waiting for infection to clear and then have removed her shunt. They now say she may not even need one. Hoping to get home soon! 

    May 28, 2022
    Kennadie’s Journey

    Kennadie has had her feeding tube surgery and is in recovery. Once recovered she will have surgery for her brain shunt. Her heart rate is extremely high and is being monitored closely. She is a fighter and has been a trooper through all her struggles so far. We appreciate any help and prayers for our sweet little princess.