(where it started)
Ryder has a life threatening condition called multicystic kidney disease. When I (mother)was 19 weeks along, it as discovered on ultrasound that Ryder's kidneys were not functioning because of the cysts. As a result, no amniotic fluid was being made and his lungs were not able to develop properly. Even though his heart had been very strong throughout the pregnancy, Desi and Kyle were told that Ryder had only a 1% chance of survival and would possibly have many physical birth defects. He was taken to the NICU immediately after delivery and was on life support with a ventilator and (ECMO), a treatment that uses a pump to circulate blood through an artificial system which provides heart-lung bypass support outside of the baby's body. Additionally, he has multiple chest tubes and many other lines to support his life at the beginning. Ryder spent the first 6 months of his life in the hospital.
(where we are now)
Ryder got his kidney transplant from a living donor on March 19th, 2021. He was also able to come off oxygen after the transplant. Since getting a kidney Ryder has needed to be hospitalized many times. This time we brought him to the ER for irritability and low-grade fever, little did we know that we would have a longer stay with no idea when we get to go home. Every lab, biopsy, scopes, tests doctors are doing are all coming back normal. They extended their horizons and on Monday, August 16th Ryder will have many tests done under sedation, one of which is looking for PTLD - Rare cancer developed after transplant. I as his mother get paid to be his PCA as he can not go to daycare because of his medical needs. I am the primary money-maker, so when Ryder is in the hospital my income is cut.