Story
Name
Barrington Larrison
Injury/Illness
Birth Defect
During my pregnancy we found out that our baby boy had a rare chromosome disorder and a disorder that affect his joints. Our son Barrington was born in April, from the doctors we were preparing for the worst scenario. He was born with a compromised airway due to a small jaw, skeletal and muscular contractions of his arms and legs; including club feet. Our son has now been in the NICU for 22 days. He has had a major six hour long surgery on his jaw, got a feeding tube placed and just got his first of 10+ casts done on his lower extremities. We are very thankful for all the care he has received at the NICU, we are nervous and of course excited to bring him home. Due to his ongoing medical needs my husband took two weeks off of work unpaid. I am already dropping my hours at work from full time when I go back to work. This will be a very difficult year for us. We are very thankful for any consideration for assistance, but we understand that others may have more need than us.
