At our 20 week ultra sound we were told that something was wrong with baby's heart. We were referred to a maternal and fetal specialist in Lincoln, Nebraska. Then he referred us to a pediatric cardiologist in Lincoln,NE. Braxton was diagnosed with HLHS. At one of our appointments with the cardiologist she saw that he had a pulmonary obstruction. She referred us to Children's Hospital in Omaha,NE for a second opinion. The cardiologist in Omaha took over our care and confirmed the findings. We delivered at Children's Hospital on April 2nd. Braxton was taken to the cath lab that day for a stent placement in a vertical vein. One week later he had his hybrid surgery. Among HLHS he also has Mitral Atresia, Coarctation of Aorta, VSD, Aortic Stenosis and a grade 3 brain hemorrhage. A few days after Braxton surgery he ended up getting a blood infection. He is on a lengthy antibiotic treatment. On April 18th he was taken back to the OR for a PA band tightening. The 8th of May he had a repeat head ultrasound to check on the brain bleed. It was discovered the bleed worsened turning into hydrocephalus. By Monday Braxton was becoming more symptomatic. Children's Hospital in Omaha does not have a neuro surgeon. Braxton was air lifted to Children's Mercy in Kansas City,MO. On Tuesday May 12th, Braxton had a VP shunt surgery to help drain the fluid from his brain into his peritoneal. Surgery went well. He was taken on the ventilator early this morning and on oxygen. When he is stable enough we will be transferred back to Children's Hospital in Omaha to continue his care there.