The Riddle Family

Baby Easton Mark was born to Jeff and Ashley on March 22, 2019 at 2:38pm. During delivery Eason's heart rate began to drop and he was unable to breathe on his own. He was rushed to the NICU at Sanford Hospital. Easton has been through a lot in the first month of his life. He has had many MRIs EEGS, EKGS, sweat test and x-rays. At 3 weeks old Easton had surgery to remove part of his intestines and appendix. He later was diagnosed with Hirschsprung Disease and underwent another surgery to remove his colon and part of his small intestine. Since surgery, Easton has slowly been introduced to milk through a g tube in his stomach. We are still a long way from where he needs to be with his food, so he still remains on tpn through a picc line. Easton was also just diagnosed with CCHS (congenital central hypoventilation syndrome). The chances of him getting this gene mutation were 1 in 6.3 billion with only 1,200 people in the world having it. Easton has no respiratory drive when he sleeps, so he stops breathing and requires ventilation. With this being so rare, we will be flown to see a specialist in Madison, WI for a duration of time. During our time there we will determine if he can stay stable on a CPAP mask or if he will need a tracheotomy.  Easton remains in the NICU with no anticipated date for discharge.