The Williams Family

Our precious baby boy Isaac joined our family via emergency c-section a week early on July 27th. At my 20 week anatomy scan during my pregnancy with him, we found out he had bilateral clubfoot, clenched fists, and a small jaw. Because of his small jaw and small airway, he has breathing problems and can't eat orally. The doctors believe he has a very very rare disorder called Freeman Sheldon Syndrome which affects his joints and muscles. After spending 3 weeks at the NICU in St. Cloud, we have been transferred to Children's Minneapolis where he has a NG tube, a tube to help him breathe, and EEG leads on his head to monitor seizure activity. He will most likely spend several more weeks there. My husband is running low on PTO, and I am a stay at home mom. Which means we are a family of four living on one income. Any help would be greatly appreciated!