Charlie was only 6 months old when he was diagnosed with Koolen de Vries Syndrome. We had no idea that the micro-deletion on one chromosome would quite literally impact every facet of his life. Sweet Charlie suffers from epilepsy and is on a keto diet. He is non-verbal, unable to walk, but consistently sitting on his own now! This kid works SO hard! Over the past few months, Charlie has endured several hospitalizations for rhinovirus, having small seizures again, and went into cardiac arrest multiple times.

But nothing will get him down. Charlie does everything with the biggest smile on his face.  With your help, we are hoping to get assistance with medical care, therapies, and required equipment for Charlie😍 

Thank you