Kylie is an energetic, loving, determined, and independent 6-year-old girl. She loves to play with her friends, going to school, being outside, and absolutely loves being a big sister to her 8-month-old "sissy" Avery.
Around 3 months old Kylie started having seizures. After several weeks in the hospital the doctors we able to get them under control with the help of medication. She is currently 4 years seizure free!!
As she grew up, she started showing signs that her body wasn't moving and operating the way it should. After several MRI's, CT scans, X-Rays, blood draws, lots of testing, therapies weekly, and countless doctors appointments she was diagnosed with Cerebral Palsy. She has battled with high muscle tone/spasticity that has been getting harder and harder to manage. After more appointments and more testing, it was determined that she is a candidate for a surgery called Selective Dorsal Rhizotomy (SDR) on May 11th, 2022. They will go into the end of her spinal cord and cut the nerve rootlets. She then will be inpatient for 6 weeks with rigorous therapy learning and reteaching her body/muscles to move the correct way - starting with rolling, sitting, crawling, and then walking. After coming home, she will then have outpatient therapy 5 days a week and slowly taper down. It will take a year to get back to baseline (where is at now) and then another year after that to start seeing gains (doing things she cannot do right now).
Thank you for reading and considering donating for our little peanut!