Waconia, MN

The Bohnenstingle Family

Lilliyn Bohnenstingle
Epilepsy, Chiari Malformation, Cavernous Malformations, Atrial Septal Defect

Our sassy, one of a kind, 3 year old Lily has been through more in the last few months than many will go through in a lifetime.  Since August 2019, she’s been diagnosed with a Congenital Heart Defect, Status Epilepsy, two rare (unrelated) brain malformations, has undergone Open Heart Surgery, had 2 scheduled Brain Surgeries, had multiple hospital stays, and just had emergency brain surgery on June 26th. BUT we have no doubt that she'll continue to rock her multiple Warrior titles, and will continue to show us what strength really is.

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