Story
My name is Brittany Feller and on May 15, 2018 I went in for a routine ultrasound to find out the gender of my baby. I found out that I was having a little girl, but I also found out that she has a rare heart malformation called Ectopia Cordis, where her heart is on the outside of her thorax. She also has slight pentalogy of the Cantrell where a part of her liver is protruding, doctors suspect this will fix itself after birth. She is 1 in a million. Baby and I will be relocated to Rochester on August 15th, where we will prepare for her birth via c section early September. I will be unemployed for an extended period of time, up to six months while she is in recovery. Dylan was born on August 31st and is in the CICU, she is currently on ECMO to recruit her lungs and her stomach has formed over completely and all of her liver and bowel are back inside and covered with skin.