The Gutterud Family
Our Story
Hi! Ava is my beautiful, kind and smart 15 year old daughter. She loves to sing, hang out with her friends, draw and dance. For the past three years, Ava has struggled with her physical and mental health however it took a turn in the past month for the worse.
Ava has faced many struggles in her short 15 years of life. She has faced all of these experiences bravely and continues to fight to experience a normal and happy life . A long history of abuse has caused a number of physical and severe mental health issues. She has several GI issues, a new diagnosis of Non Epileptic Events, avoidant restrictive intake disorder (ARFID), rumination syndrome, severe PTSD, and generalized anxiety.
She was recently hospitalized in St Cloud, then at Children’s Hospital. During this time I was fired from my job for missing work. As a single mom this is crippling for Ava and us financially. I am in danger of being evicted from our apartment. This would cause extreme anxiety for Ava, because of her diagnoses, she does not tolerate stress very well. I am looking for a new job but Ava has ongoing medical care that makes full time employment difficult.
Ava will be attending partial hospitalization in the future, however she will need medical intervention for her Non Epileptic Events, her gastrointestinal issues, disorder treatment, general therapy and appointments with case management. These appointments decrease my work hours and greatly affect my income. Any help is desperately needed and greatly appreciated! Thank you.
Family Updates
We put up the Christmas tree on Thursday, or I should say that Ava put up the Christmas tree and decorated it! I am so glad she is still able to find joy and happiness lately with all she is going through.
The NEE’s continue, overall they are getting shorter, however she is still out of school as the episodes involve her screaming and reliving her past. This is especially hard for me since the plan to extinguish the episodes is to walk away and allow the brain and body to manage them. If I get involved and try to soothe her the episodes are prolonged. It’s still hard when she’s crying out for me. We meet with her new social worker tomorrow and will hopefully be able to come up with a plan for school until she is able to start partial hospitalization.
I have another job interview today and am hopeful for good news this week from an interview I had two weeks ago.
Plan for the day is to try to relax. Ava will probably bake more unicorn poop cookies, which helps to lower her anxiety.
Baby steps toward health and healing!