The Olmedo Family

Minneapolis, MN
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    Name
    Ulises Olmedo
    Injury/Illness
    Infant-Related Illness

    Hi my name is Melisa and I am a single mother of 4, expecting baby number 5. I have always been a hard working mama, trying the best for her babies. In March of this year I was surprised to find out I was pregnant with my baby boy, Ulises. He was not in my plan of life, but never the less excited to have one more brother or sister to add to our family. As I started regular prenatal care, I found out my beautiful baby has a genetic disorder called Osteogenesis Imperfecta and he is type 2. The doctor took me into a tiny room, alone, to tell me the diagnosis and it is considered lethal. I felt as if my world was falling apart. I have been given the choice to terminate the pregnancy, but as his mother, I stood firm that I will give him every opportunity to fight until the end. I believe he was sent here with purpose, considering I was on the depo shot when I conceived him.

    In the past few months, I  have been on a roller coaster of emotions. With the diagnosis, came lots of doctor appointments, which lead to me loosing my only source of income. Everyday has been a struggle, dealing with financial hardship and trying to stay positive emotionally for the unknown. At that point, the doctors could not tell me what to expect with the birth, but had prepared me for the possibilities. Whether Ulises survives and is in NICU for a time, or he comes home right away, or having to face what no parent should, and say good bye to my child. Along with all of this going on, the baby's father decided he was not strong enough to handle it and left us to fend for ourselves.  

    But on Monday, November 7th, my beautiful baby boy Ulises was born. I knew he would fight and when I heard him cry, it was the happiest day ever! He was not expected to survive, so now the doctors are learning alongside me how to help him thrive in life. There are a numerous of unknowns for us, and I am being split in half, having to be home with my four other children and having to be in the hospital with Uli (nickname the NICCU nurses gave him). I am his only support, so I feel I need to see him at least once a day so that he never feels alone. I want to give him the best chance at survival and have been at the hospital everyday, so he knows I am fighting along side him.  I want him to be able to come home and be with the family that loves him. With this, I am still not able to work and bills are only adding up by the minute. 

    November 21, 2022
    Help little Uli

    So we looked like we were on track to having hope of maybe going home in the next 2 weeks but unfortunatly may not be that way. Everything seemed to moving smoothly but we are back on Oxygen yet only alittle and more pain has surfaced and causing heart rate issues and breathing issues. Uli still tries to carry a smile through it all. He knows mama is right along side fighting for him.

    November 18, 2022
    Help for the Olmedo family

    Uli is making so much progress I was able to hold him the other day for the first time at 8 days old. I was so happy I started to cry because my whole pregnancy there was always the fear the reality that I may never be able to have him in my arms alive. Yesterday was my first time changing him which I didnt think with baby #5 would be any different but it was and I was nervous just changing his diaper causes him pain and as his mother breaks my heart but I know everyday he will get alittle better and grow alittle stronger. An also yesterday at 10 days old he had his first bath and to my surprise he loved it. He is so tiny but has so much personality already and is just a love bug every person that pases him cant help but stop and and call his name Uli and he always smiles he is a flirt at 10 days I am in a world of trouble when is older.