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Connor was born on 5-20-19 with his twin brother Dominic and an early 28 weeks along both right around 2 lbs. Both boy were intubated within a short time of entering this crazy world. The boys spent the first few months together in the NICU but big ...

Hi - My name is Emily! I was born at 30 weeks and 2 days, however my heart condition was identified at 19 weeks and 2 days when my heart rate at my anatomy ultrasound was 275 bpm. My incredible care team did there best to stabilize my heart while I...

Iesha was born with Edwards syndrome at 35weeks via c-section. She has a repaired trach and Esophagus. She has Respiratory complications and totally G tube feed. She has been hospitalized 8 times for respiratory issues and viruses. She is currently...

After a grueling 7 months of undiagnosed symptoms, our son Spencer was diagnosed with stage 4  high-risk neuroblastoma. It completely shook our family of 8. We were facing a very long 18 months of intense treatment.  As relived as we were to finally...

Two weeks after moving to Florida from little Rock Arkansas, Zeniyah was diagnosed with a stage IV brain tumor (glioblastoma). She presented one day with signs of confusion after reporting to me (her mother) that she had a headache. We rushed her...

At 31 weeks gestation, Jonathan was born weighing 2 lb 2 oz and he was IUGR (Intrauterine growth restriction). At birth, he was diagnosed with several conditions that have kept him rotating between NICU and ICC. Currently, we have been at children's...

Lilli is a 3-1/2 year old girl that has had a variety of health issues throughout her life. At 6 months old, Lilli had an AV Canal heart defect repaired but was hospitalized for 4-1/2 months due to complications.  In February 2018, Lilli was...